Robert Fiore is the President and Founder of the
Connecticut Epilepsy Advocate, Inc. a recognized 501 (c) (3) Non-Profit Organization here in Milford.
Robert was born and raised in Stamford and has been a
resident of Milford since 1986. He is the President and Founder of the Connecticut Epilepsy Advocate. He has had Epilepsy since birth but it was discovered when he was nine months old.
In December 2005 he was scheduled to have temporal lobectomy surgery to correct his Epilepsy and he told the doctor: When I recover I will do everything possible to push and promote Epilepsy. The look on the doctors face was friendly but he did not look convinced.
Unfortunately,they had to reschedule. The surgery took place Tuesday, January 17, 2006 and upon recovering he became an Advocate for Epilepsy.
Many people watched what he did and he came to a turning point in his life in the summer of 2009 and was told: "Why don't you start your own organization". Robert spoke with others and they agreed and supported that suggestion.
Their web site was launched November 11, 2009 and is
formatted to help people with information in many forms as well as making people "Aware About Epilepsy" in many ways. Both it and their organization have grown. We truly hope you will follow us as we make ...Progress Through Awareness.
Robert will be posting something about Epilepsy on a
bi-weekly basis however, he is looking for people living with Epilepsy, their family members and friends to tell their story and assist them in any way he and his Organization can.
Here is their web site: